As most of you know, Brandon and I are expecting identical twin boys. Up until Dec. 3 we had no clue that they were even identical or had any problems. We thought that they were fraternal all along. I was 21 weeks along at the time. We were told our little boys had a rare syndrome called twin twin transfusion syndrome. We were in total shock as they discussed survival rates and "options" with us. We were thrown right into thinking that we were going to lose one if not both babies. Our options were 1. to do nothing and watch 2. selective termination 3. laser surgery to separate the blood vessel connections that the boys shared. With this surgery come risks of losing one or both of the babies. We had a hard time processing all of this information because at the time we were just in shock. We had no idea things were this serious.
On Dec. 8th we got a call from a surgeon in Miami, FL telling us they wanted us in Florida that Thursday for a consult on the surgery. If we were candidates for the surgery, it would be done that Friday. This was all happening way too fast for me and Brandon! We did not want to jump into a surgery where we could lose our babies. I had done my research online, and found a website that had a lot of information on TTTS. I got in touch with the founder of the website and also got in touch another surgeon who has lots of experience dealing with this syndrome. His name is Dr. De Lia. He was the first to pioneer the surgery back in the 80's. To make a long story short I called him and we declined the surgery due to the information he had given me during our phone call.
At our next appointment our doctors told us it was probably a good thing we didn't jump into surgery! A week ago all they knew to do was throw us into surgery! Everything had pretty much stablized for the time being. Since then fluid levels have pretty much stayed the same over a 3 week period. This is good news!
They are now worried that the little baby has something called Selective Intrauterine Growth Restriction. They don't think he has a lot of placenta share. This means he gets less nutrients and blood to help him grow. This can cause him to stop growing at anytime. He also has a 2 cord nutrient vessel instead of the 3 he is supposed to have. At our last growth check he had grown 4 ounces. At this point they say any growth is good! He also had absent end flow of his umbilical cord at our last appointment. This is not good, but the blood flow can stay like this for weeks and sometimes it can return to normal. It just means we may have to be monitored even more than we are now!
I am now 25 weeks along. Our next appointment is Monday Jan. 4th. We are also checking growth at this appointment. This is going be a big appointment for us. If the little baby's blood flow is not better and he is not showing signs of growth, they are going to discuss "options" with us again. From what I know their options suck! :) We are going to fight for both of our little boys! I have also started doing my research on SIUGR and know that there is hope past 24 weeks for both boys! I have a good feeling though that our little one is growing and will continue to grow! If we can make it to 28 weeks our chances our wonderful! :)
We want to thank all of you for your support and prayers! I has really meant a lot to us! We completely trust in the Lord and know he will get us through this no matter what! I started this blog because it is easier to post here than it is on facebook. I will post again on Monday after our appointment. Once again thanks to all of you! We love you all very much! :)